stripes.com 11 Jan, 2021 18:30 am

Baby with a rare genetic disorder needs a bone marrow transplant

Wiskott-Aldrich syndrome certainly can be a death sentence. But a bone marrow/stem cell transplant would give Noah the best possible chance at a long, normal and healthy life.

“He giggles and laughs and is happy and brings us all so, so much joy,” said Jessica, who with her husband, Amin, raises their children in their home on the Far North Side near Worthington and Powell.And there’s been a lot of tears," said Jessica, 33.Getting connected to the small but tight-knit worldwide community of other Wiskott-Aldrich families has been an equal saving grace, Jessica said." Jessica said that although this has all been frightening, she thinks the early diagnosis was a blessing.

“It’s a world that no one can ever really understand until you are a part of it,” Jessica said."I think about all those families out there with sick children who don't have an option," said Jessica as she softly rubbed Noah's belly, bringing a coo.

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